Osteosarcoma Archives - Children's Cancer Research Fund https://childrenscancer.org/tag/osteosarcoma/ Children's Cancer Research Fund invests in lifesaving, leading-edge research in the prevention, diagnosis, treatment, and cure of childhood cancers and blood-related disorders. Thu, 27 Jun 2024 21:41:41 +0000 en-US hourly 1 Divide and conquer – a new way to study osteosarcoma https://childrenscancer.org/divide-and-conquer-a-new-way-to-study-osteosarcoma/ Mon, 25 Sep 2023 16:52:02 +0000 https://childrenscancer.org/?p=13560 Using The Fight Osteosarcoma Together (FOT) Super Grant, funded in part by the Zach Sobiech Osteosarcoma Fund, Dr. Grohar will spend three years leading a research team to investigate a family of genes called MYC. His larger goal is to identify targeted treatments for osteosarcoma patients whose MYC genes have gone awry.

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]]> Six funding partners unite to defeat this formidable childhood cancer https://childrenscancer.org/six-funding-partners-unite-to-defeat-this-formidable-childhood-cancer/ Thu, 24 Aug 2023 18:23:00 +0000 https://childrenscancer.org/?p=13316 If we want to defeat osteosarcoma, a formidable bone cancer, we must put a powerful force behind research. That’s why CCRF’s Zach Sobiech Osteosarcoma Fund is proud to unite with five funding partners to back The Fight Osteosarcoma Together (FOT) Super Grant, a new three-year, $1.5 million dollar grant to fight recurring osteosarcoma.

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]]> Researchers use “biological scissors” to cut off paths for osteosarcoma https://childrenscancer.org/researchers-use-biological-scissors-to-cut-off-paths-for-osteosarcoma/ Thu, 03 Dec 2020 16:18:31 +0000 https://childrenscancer.org/?p=7897 Osteosarcoma, a deadly bone cancer, has many lethal talents: it can shuffle around its genome to evade therapies, confuse the immune system, and grow exponentially even if it starts with just a few cancer cells in a child’s body.

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]]> Clouds Choir – Celebrating Zach Sobiech’s Musical Legacy https://childrenscancer.org/clouds-choir-celebrating-zach-sobiechs-musical-legacy/ Wed, 18 Nov 2020 21:01:48 +0000 https://childrenscancer.org/?p=7831 Above: The “Clouds” cast alongside Zach Sobiech’s family and friends at Clouds Choir 2019. The 2020 virtual Clouds Choir took place on on December 11 at KS95.com. This year, Disney+ brought Zach Sobiech’s story to the world with the movie “Clouds,” based on his rise to fame before dying of osteosarcoma in 2013. But the first people who helped spread Zach’s music and joy were ...

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]]> Frequently asked questions about Zach Sobiech movie, “Clouds” https://childrenscancer.org/frequently-asked-questions-about-zach-sobiech-movie-clouds/ Fri, 30 Oct 2020 15:39:27 +0000 https://childrenscancer.org/?p=7709 Left: Fin Argus, playing Zach Sobiech in "Clouds." Right: The real Zach Sobiech plays a concert in Minnesota. On October 16, Disney+ released the original movie “Clouds,” an inspiring film based on the true story of teenage songwriter Zach Sobiech who rose to fame before passing away from osteosarcoma, a deadly bone cancer, in 2013. But how many of the events in the movie are ...

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]]> Director Justin Baldoni on “Clouds” Movie and the “Zach Effect” https://childrenscancer.org/director-justin-baldoni-on-clouds-movie-and-the-zach-effect/ Tue, 06 Oct 2020 14:26:36 +0000 https://childrenscancer.org/?p=7458 Justin Baldoni at Clouds Choir 2019, a celebration where thousands gather at the Mall of America to sing Zach Sobiech's song, "Clouds." When actor and director Justin Baldoni first met Zach Sobiech eight years ago, he was shooting a documentary series called “My Last Days” about people who were navigating the experience of living while dying. He had already shot all six planned episodes, but ...

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]]> Behind the scenes of the Zach Sobiech movie, “Clouds” https://childrenscancer.org/behind-the-scenes-of-the-zach-sobiech-movie-clouds/ Fri, 25 Sep 2020 16:26:31 +0000 https://childrenscancer.org/?p=7350 Donate“Clouds,” an original movie from Disney+, is based on the true story of Zach Sobiech, a Minnesota teen who passed away from osteosarcoma in 2013. Justin Baldoni, who directed “Clouds,” met Zach and his family in 2012 while filming a documentary called “My Last Days.” Ever since, Justin has been determined to make Zach’s story into a feature film. For more about Zach, read The ...

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]]> Zach Sobiech’s friends and then-girlfriend talk “Clouds” movie https://childrenscancer.org/zach-sobiechs-friends-and-then-girlfriend-talk-clouds-movie/ Mon, 14 Sep 2020 14:22:22 +0000 https://childrenscancer.org/?p=7144 On October 16, Disney+ is set to release the movie “Clouds,” an inspiring film based on the true story of teenage songwriter Zach Sobiech who rose to fame before passing away from osteosarcoma, a deadly bone cancer, in 2013. The movie, directed by Justin Baldoni, centers around Zach’s musical partnership with childhood friend Sammy Brown (played by Sabrina Carpenter) and then-girlfriend Amy Adamle (played by Madison Iseman), who stand by him as he navigates living while dying. 

We asked the real-life Sammy and Amy, and Zach’s friend Mitch, what it was like to see Zach (and themselves) portrayed in a movie, and what they remember most about their friend. 

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]]> A Cure in the Making for Osteosarcoma https://childrenscancer.org/a-cure-in-the-making-for-osteosarcoma/ Tue, 01 Sep 2020 14:06:43 +0000 https://childrenscancer.org/?p=7249 In talking about a new project to develop new treatments for osteosarcoma, University of Minnesota researcher Beau Webber, PhD, uses a word he doesn’t typically get to use: cure. “I don’t throw that word around, and I definitely don’t use it lightly,” Webber said. “But it’s hard to overstate the potential here. It’s realistic to have that as our goal – there’s a real chance for ...

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]]> The True Story Behind “Clouds” and the Real Zach Sobiech https://childrenscancer.org/the-true-story-behind-clouds-and-the-real-zach-sobiech/ Mon, 24 Aug 2020 14:53:23 +0000 https://childrenscancer.org/?p=6925 DonateIn October 2020, Disney+ released the movie “Clouds,” an inspiring film about teenage songwriter Zach Sobiech who rose to fame before passing away from osteosarcoma, a deadly bone cancer, in 2013. The movie, directed by Justin Baldoni, chronicles Zach’s senior year of high school and the last year of his life. When the movie begins, Zach (played by Fin Argus) has already been fighting cancer ...

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]]> “Clouds: A Memoir” Q&A with Author Laura Sobiech https://childrenscancer.org/clouds-a-memoir-qa-with-author-laura-sobiech/ Thu, 20 Aug 2020 18:40:34 +0000 https://childrenscancer.org/?p=6939 DonateLaura Sobiech is the author of “Clouds: A Memoir,” a book that chronicles the final year of her son Zach’s life before he passed away from osteosarcoma in 2013. Her book has been adapted to the big screen in “Clouds,” an original movie streaming on Disney+. Fin Argus will play Zach Sobiech, and Neve Campbell will play Laura Sobiech. "Clouds: A Memoir" by Laura Sobiech. ...

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]]> A Cure in the Making https://childrenscancer.org/a-cure-in-the-making/ Mon, 12 Aug 2019 13:04:03 +0000 https://childrenscancer.org/?p=4679 In talking about a new project to develop new treatments for osteosarcoma, University of Minnesota researcher Beau Webber, PhD, uses a word he doesn’t typically get to use: cure. “I don’t throw that word around, and I definitely don’t use it lightly,” Webber said. “But it’s hard to overstate the potential here. It’s realistic to have that as our goal – there’s a real chance ...

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]]> I Went There Once https://childrenscancer.org/i-went-there-once/ Wed, 21 Feb 2018 21:16:08 +0000 https://childrenscancer.org/?p=2415 I went to that place once. For just a moment, I thought about what could have been, and I almost lost every spark of joy I had left. Despair almost won.

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]]> New clinical trial for osteosarcoma https://childrenscancer.org/clinical-trial-for-osteosarcoma/ Mon, 05 Feb 2018 19:38:30 +0000 https://childrenscancer.org/?p=2357 A lot can happen in five years. Five years ago, Zach Sobiech was battling osteosarcoma and watching his hit song “Clouds” climb to the top of the charts. At that time, his family started the Zach Sobiech Osteosarcoma Fund to help researchers find better treatments for kids with this devastating disease. Now, five years later, we’ve raised $1.5 million, and your support has fueled a ...

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]]> Pumpkin Pie without Nutmeg https://childrenscancer.org/pumpkin-pie-without-nutmeg/ Tue, 14 Nov 2017 21:27:14 +0000 https://childrenscancer.org/?p=2113 Eight years ago, on a cold and dreary November day, Rob and I picked Zach up from school to take him to our local hospital for an MRI. We wanted to find out why he was still having pain in his left hip after two months of physical therapy. We thought it was likely something simple, like a torn hip flexor. But it wasn’t simple. It was a tumor.

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]]> Nathalia’s Story – A Resilient Spirit https://childrenscancer.org/nathalias-story/ Mon, 09 Oct 2017 19:06:47 +0000 https://childrenscancer.org/?p=1980 Nathalia is resilient, spirited and humorous, but it’s her heart that her mom, Katy, loves most. Full of gratitude, Nathalia never misses a chance to thank the nurses, doctors and other caregivers who’ve helped her through her treatment for osteosarcoma, a devastating bone cancer. Before she was diagnosed, she had been limping and complaining of leg pain for about six months. During that time, Katy ...

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]]> A Gift That Never Comes Too Late https://childrenscancer.org/a-gift-that-never-comes-too-late/ Wed, 28 Dec 2016 22:15:37 +0000 http://dev.childrenscancer.org/?p=423 When you lose someone close, it’s the memories that bring them back to life again. The holidays are particularly hard, so when my heart aches for Zach and I need to feel close to him again, I put on my headphones, tap on a playlist of songs from when he was alive and I travel back to better times when he was still here. I replay the memories much like I replay the songs, both are well worn and loved.

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]]> “They Should Have Fed Him More Broccoli” https://childrenscancer.org/they-should-have-fed-him-more-brococoli/ Fri, 02 Sep 2016 21:03:17 +0000 http://dev.childrenscancer.org/?p=95 Laura Sobiech is the author of “Clouds: A Memoir,” a book that chronicles the final year of her son Zach’s life before he passed away from osteosarcoma in 2013. Her book has been adapted to the big screen in “Clouds,” an original movie streaming on Disney+ this fall. Fin Argus will play Zach Sobiech, and Neve Campbell will play Laura Sobiech. When Zach was diagnosed with osteosarcoma ...

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